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We are open to discussion and networking around any of the project themes. We embrace collaboration and always seek participation from patients, carers, family members, patients groups/organisations, policymakers, industry representatives and other researchers both inside and outside academia.

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You can contact our team via any of the channels below:

• Email:   orphanisation@sheffield.ac.uk
• Post:     
• Twitter:    

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Alternatively, contact our individual team members:

Principal Investigator:

Workstream leads:

For an outline of our different workstreams, see the project homepage:

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The wider network of people associated with our project:

Individual researchers:

The following individuals input towards our project in various ways:

Professor of Innovation Management, SPRU, University of Sussex

Researcher, iHuman Institute, University of 91̽»¨

The SPIN network:

The following members of the input towards our project in various ways:

Associate Professor, Universiteit Utrecht


Assistant professor, York University

Researcher, Universiteit Utrecht